Justicia en salud y genética

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Publicado en:	Informes científicos y técnicos. Vol. 1 No. 1 (2009),208-246 1. Río Gallegos : Universidad Nacional de la Patagonia Austral, 2009
Autor Principal:	De Ortúzar, María Graciela
Formato:	Artículo
Temas:	Teorías de justicia Información genética Normalidad Igualdad de oportunidades en el acceso a la salud Necesidades médicas Enfermedad Theories Justice Information Genetics Medical needs Disease Opportunities Access Health Ciencas médicas Salud Genética humana Derecho a la salud Teorías
Acceso en línea:	https://www.memoria.fahce.unlp.edu.ar/art_revistas/pr.9513/pr.9513.pdf http://secyt.unpa.edu.ar/journal/index.php/ICTUNPA/article/view/ICT-UNPA-08-2009
Resumen:	Las expectativas puestas en el conocimiento genético exceden el ámbito de la medicina tradiciona, debido a que la intervención directa en la lotería natural demandaría el replanteamiento de conceptos centrales de justicia en salud: necesidades médicas, enfermedad, normalidad, e igualdad de oportunidades en el acceso a la salud. El punto en debate es sí el replanteo de dichos conceptos conlleva un cambio radical en las teorías de justicia (libertariana y/o liberal), mostrando su obsolescencia, o sí simplemente se requiere ampliar dichos conceptos claves por fallas estructurales en las mismas teorías. Como hipótesis general considero que los supuestos cuestionamientos, lejos de socavar las bases de las teorías de justicia, sólo ponen en evidencia sus viejos problemas estructurales. Por razones expositivas, dividiré la presentación tres partes. En la Primera parte, analizo la teoría libertariana, estudiando las contradicciones del modelo a través del impacto de la información genética en el seguro privado de salud. En la Segunda Parte, desarrollo la propuesta alternativa liberal rawlsianadanielsiana del modelo de seguro público, evaluando las implicaciones de la genética a partir de la crítica de su concepto biológico de enfermedad y su restricción al acceso a la salud por necesidades naturales. En la Tercera parte presento un modelo integral de necesidades y capacidades básicas, comprendiendo la prevención, el tratamiento y el mejoramiento moralmente permisible (genético y no genético).Mi aporte principal consiste en la elaboración de este modelo normativo integral de necesidades y capacidades para la regulación conjunta de la información y terapia genética con los restantes problemas de salud. The expectations placed on genetic knowledge exceed the scope of traditional medicine, because direct intervention in the natural lottery would require the rethinking of central concepts of justice in health: medical needs, illness, normality, equal opportunities in accessing health. The point in debate is the rethinking of such concepts involves a radical change in the theories of justice (libertarian and / or liberal), showing their obsolescence, or simply what is required to expand the key concepts for structural failures in the same theories. As a general hypothesis, we consider that the supposed questionnaires, far from the bases of theories of justice, only highlight their old structural problems. For expository reasons, I will divide the presentation into three parts. In the first part, I analyze libertarian theory, studying the contradictions of the model through the impact of genetic information in private health insurance. In the second part, development of the liberal, rawlsianadanielsiana alternative proposal of the public insurance model, evaluation of the implications of genetics based on its biological concept of the disease and its access to health due to natural needs. In the third part presents a comprehensive model of basic needs and capabilities, including prevention, treatment and morally permissible improvement (genetic and non-genetic). My main contribution is the development of this comprehensive regulatory model of needs and capabilities for the joint regulation of information and genetic therapy with the remaining health problems.
Notas:	Informe final de Doctorado
Descripción Física:	p.208-246
ISSN:	ISSN 1852-4516

https://www.memoria.fahce.unlp.edu.ar/art_revistas/pr.9513/pr.9513.pdf

http://secyt.unpa.edu.ar/journal/index.php/ICTUNPA/article/view/ICT-UNPA-08-2009

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Justicia en salud y genética

https://www.memoria.fahce.unlp.edu.ar/art_revistas/pr.9513/pr.9513.pdf

http://secyt.unpa.edu.ar/journal/index.php/ICTUNPA/article/view/ICT-UNPA-08-2009

Consultar en el catálogo de Biblioteca FaHCE

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