Rare Diseases in the Age of Health 2.0

Detalles Bibliográficos
Otros autores o Colaboradores:	Bali, Rajeev K (ed.), Bos, Lodewijk (ed.), Gibbons, Michael Christopher (ed.), Ibell, Simon (ed.)
Formato:	Libro
Lengua:	inglés
Datos de publicación:	Berlin, Heidelberg : Springer Berlin Heidelberg : Imprint: Springer, 2014.
Series:	Communications in Medical and Care Compunetics, 4
Temas:	Medical economics. Engineering. Biomedical Engineering. Health Informatics. Health Economics.
Acceso en línea:	http://dx.doi.org/10.1007/978-3-642-38643-5
Resumen:	This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater.Â The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.
Descripción Física:	xxxiii, 292 p. : il.
ISBN:	9783642386435
ISSN:	2191-3811 ;
DOI:	10.1007/978-3-642-38643-5

http://dx.doi.org/10.1007/978-3-642-38643-5

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Rare Diseases in the Age of Health 2.0

http://dx.doi.org/10.1007/978-3-642-38643-5

Consultar en el catálogo de Biblioteca FING

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